ALS (amyotrophic lateral sclerosis) is an incurable illness which disrupts the body's control over it's muscles leading to suffers being irreversibly paralyzed. French Producer Pone (Guilhem Gallart) fell ill in 2015 and is now on permanent life support, but incredibly he's still able to make music - his return to music was a 2019 album 'Kate & Me', an ode to Kate Bush. It was the first album to be recorded entirely using eye-tracking software. What an astonishingly defiant achievement - here's one of his newer tracks:
'The Diving Bell & The Butterfly' is a book, and subsequent film about Jean Dominique-Bauby, the fashion editor who lived with locked-in syndrome - powerful, moving and inspirational. Pone has also published ALS for Dummies, a book that collects his articles about the under-represented condition.
Read his story in the Guardian here: https://www.theguardian.com/music/2020/feb/14/pone-paralysed-producer-making-music-with-his-eyes
His youtube channel is here. Listen and donate to his music here: https://www.listenanddonate.com/fr-fr/
About the author [midierror]: midierror makes nifty Max For Live devices, innovative music hardware, award winning sample packs and hosts a podcast speaking to people in the music world.
Older Music Machines & the People Who Still Use Them
Revisions that turned synths into brand new machines